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  1. #1

    Yet Another Update

    In twelve more days, it'll be my ten-month anniversary of undergoing my last chemo and radiation session and the word from my doctors is that there's no sign or indication of cancer. Which is a good thing but, man, the after-effects of the treatments are still with me, like, the neuropathy chemo gave me and made worse because I already had neuropathy on my right side and chemo made those sensations worse and the Lyrica I take every day only serves to take some of the edge off and I refuse to get back into taking powerful opiates because I got shit I need to be doing and I can't - and won't - do them while being stoned out of my mind.

    I'm talking to the NP assigned by the outfit that my insurance deals with regarding my kidneys - which are still stable, by the way - and I'm trying to explain the neuropathy to her and while she's insisting that the main cause of peripheral neuropathy is diabetes... but with an A1C of 5.3, I'm not diabetic and I'm telling her that I got this shit on the right side because of the stroke I had way back in 2006 and got another dose of it via chemotherapy. I told her that neuropathy is one of the side-effects of one of the three drugs I was being treated with and while it's never a hard given that one can experience a side effect, I was hoping to avoid them and I did... except for the neuropathy and it's a motherfucker and a half to have both of my feet hurting/feeling numb/feeling cold when my feet aren't cold and, well, I just have to suck it up and hope that the chemo-induced neuropathy is going to eventually go away... but I have little faith that it will.

    The dry mouth thing is making me fucking crazy. The recent CT scan of my head and neck reveal expected damage to my throat from the radiation treatments and, yeah, the dry mouth thing goes along with this and while it's been healing very damned slowly, you can imagine that it's not happening fast enough. At first, I had no sense of taste and there were only certain things I could taste which made trying to eat a problem because I couldn't taste it and my sense of smell was affected - those two things are a lot more connected than you might know or believe. At first, I couldn't taste anything salty but I could taste sweet; today, I can taste salt and some sweet stuff and my sense of smell is iffy.

    Our new puppy took a major dump on his training pad not ten feet from where I was sitting and... I couldn't smell it. But that little fucker likes to lay under me and... farts and I mean the eye-watering, what crawled up his ass and died kind of farts. I've mentioned the taste/smell thing to my doctors, who just nod and say that, yeah, it's gonna be like that for a while but it'll get better... eventually. They tell me to sip water during the day to combat the dryness in my mouth and that works for as long as it take me to swallow the water; seconds later, my mouth is mad stupid dry and the OTC dry mouth items haven't been effective and it's been a bitch feeling like I have a loogie stuck in my throat and I can't get rid of it but sometimes, I can spit it out and... let's not talk about what it looks like, okay?

    My immune system is still weakened but my lab work shows that it's slowly improving but my oncologist/hematologist doesn't seem to be all that worried about the values but says that the values are improving and... see you in six months.

    So, that's all for now!

  2. #2

    Re: Yet Another Update

    Congratulations on the progress you're making in beating "C"

  3. #3

    Re: Yet Another Update

    Glad to hear it !!

  4. #4

    Re: Yet Another Update

    Sounds like alot to be dealing with. Sorry to hear but glad for you that you re on the other side of the chemo and radio. I sincerely hope things keep improving. all the best

  5. #5

    Re: Yet Another Update

    yeah congrats so far so good

  6. #6

    Re: Yet Another Update

    KDaddy

    Glad to hear the good news.... I'll be sending you Positive Energy tonight!

    A.
    If it is to be, let it be with me

  7. #7

    Re: Yet Another Update

    Positive energy heading your way. Stay healthy

  8. #8

    Re: Yet Another Update

    I hate to sound like the fucking scratched record but hang in there my friend. What the treatments did to me in 6 weeks it took almost 2 years to get back to my new normal. Your doing great KDaddy. Just remember what the alternative would have been. Not trying to steal your thunder but it's been 5 years this month since my last oral surgery to remove a tumor from my tongue along with the rest of the lymph nodes in my neck. I have my yearly check up next month with my ENT oncologist. So I'm once again cancer cured.

    Have you tried the Walgreens foot pain relief cream yet? Twice a day keeps the neuropathy at bay.

    By medical standards neither one of us should be here but we are and there's good reason for that. I haven't figured my purpose yet and hopefully you do my friend. Wishing you and yours a very Merry Christmas and a fantastic prosperous 2025 KDaddy. Stay well my friend.

  9. #9

    Re: Yet Another Update

    The dry mouth thing hit me too since radiation damaged my main salivary gland. My doc gave me a drug called Evoxac that makes the other salivary glands work harder than usual and it worked well for me. Check with your doc about it. I only had to take it for a year or so. Good luck!

  10. #10

    Re: Yet Another Update

    @DD788Snipe, yeah, I tried it, and it didn't help. As far as not being here, well, um, I did die and as you know - I just didn't stay that way and I'm not complaining about that. My purpose hasn't changed, and I've had enough scares in my life that I've not left anything undone or unexperienced or whatever. The goals include staying cancer free, getting through these annoying after-effects, keep living to the fullest extent possible because I do know what happens and how it can happen very damned quickly.

    Here's wishing you and yours a great holiday season and that 2025 will be a great year to come!

  11. #11

    Re: Yet Another Update

    Quote Originally Posted by Neonaught View Post
    The dry mouth thing hit me too since radiation damaged my main salivary gland. My doc gave me a drug called Evoxac that makes the other salivary glands work harder than usual and it worked well for me. Check with your doc about it. I only had to take it for a year or so. Good luck!
    Evoxac? I'll have to ask my oncologist about it next month. Waking up in the morning with the Sahara desert in my mouth is getting really old.

  12. #12

    Re: Yet Another Update

    Quote Originally Posted by KDaddy23 View Post
    @DD788Snipe, yeah, I tried it, and it didn't help. As far as not being here, well, um, I did die and as you know - I just didn't stay that way and I'm not complaining about that. My purpose hasn't changed, and I've had enough scares in my life that I've not left anything undone or unexperienced or whatever. The goals include staying cancer free, getting through these annoying after-effects, keep living to the fullest extent possible because I do know what happens and how it can happen very damned quickly.

    Here's wishing you and yours a great holiday season and that 2025 will be a great year to come!
    Sorry it didn't work for you. I guess everyone is different.

  13. #13

    Re: Yet Another Update

    Quote Originally Posted by DD788Snipe View Post
    Sorry it didn't work for you. I guess everyone is different.
    Don't sweat it, my friend. I'm used to dealing with it but I really do wish there was something they could do about it - including eliminating it as a side-effect in cancer medications. It kinda irks me at times because my doctors are like, "Sorry about that but it's better than having cancer, isn't it (and we can't do shit about it anyway)?" and they're right about that but just ignorant as to how this can fuck with someone's mind and not in good ways and that's because they don't have neuropathy.

    I'm not trying to go back to wearing transdermal fentanyl patches...

  14. #14

    Re: Yet Another Update

    Be careful with that and I agree. Today's generation of docs don't give a crap.

  15. #15

    Re: Yet Another Update

    Quote Originally Posted by DD788Snipe View Post
    Be careful with that and I agree. Today's generation of docs don't give a crap.
    I told my doctor handling this that I was not going there with fentany because I need to function during the day, I do 99% of the driving, and it makes me horny as all the fuck get out and my old lady ain't giving it up...

  16. #16

    Re: Yet Another Update

    Quote Originally Posted by KDaddy23 View Post
    I told my doctor handling this that I was not going there with fentany because I need to function during the day, I do 99% of the driving, and it makes me horny as all the fuck get out and my old lady ain't giving it up...
    I'm living on 400mg of Gabapentin these days that just keeps mine at bay and does nothing for the ringing in my ears. That's brutal too.
    Anyway, @KDaddy23 Merry Christmas my friend. Have a great holiday.

  17. #17

    Re: Yet Another Update

    Quote Originally Posted by DD788Snipe View Post
    I'm living on 400mg of Gabapentin these days that just keeps mine at bay and does nothing for the ringing in my ears. That's brutal too.
    Anyway, @KDaddy23 Merry Christmas my friend. Have a great holiday.
    It's not that cancer sucks but how much the after-effects of being treated can suck! @DD788Snipe, a very Merry Christmas to you and with smooth sailing and gentle breezes!

 

 

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